Saturday, May 14, 2011
Monday, May 9, 2011
Maureen MacDonald's Mediocre Medical Mess
We'll start back at the beginning. Last May I was in Hospital sick very sick.
At that time they did X Rays, an MRI and a CT scan and said there was something "on" my liver. They did a double puncture biopsy and said there was nothing there not even fibrosis. They then promptly wrote on my chart Not suitable for liver transplant!
I went home but got no better. Again I was told there was something "on" my liver. This time they used an ultra-sound" to direct the biopsy to the exact spot. The result suddenly I had Hepto cellular carcinoma (liver Cancer) and it was also in my lungs and lymph nodes.
That was in early fall.
In December I was put on Nexaver a treatment that supposedly would shrink the tumor to where it could be managed. No attention at all was paid to the tumors in my lungs and strangely I was not sent to oncology the cancer people.
In the new Year I asked to be referred to oncology but nothing was done. I also found some information on a recent treatment that Nova Scotia didn't offer (surprise surprise) and asked to be referred to Montreal for it but again nothing was done.
The Nexaver seemed to be doing nothing but giving me bad chronic constant diarrhea. I expressed my concern that the diarrhea was not allowing the medication to stay in my system long enough to build up and fight the cancer and also my concern about my lungs and asked again about going to oncology to see what they could do. Again nothing was done and there didn't seem to be any great concern about the tumors in my lungs.
It seemed that they were doing nothing but watch to see what the nexaver would do.
A CT scan came back and I was told that the tumoers were in a few cases smaller but weels later somebody evidently better able to read CT scans said no they were larger and the CT scan I had This Friday gone shows they larger still.
Up to this point I am not impressed at all with the treatmant and I suspect that All I'll get from Montreal this late is that it's too late.
Beuce Devenne
At that time they did X Rays, an MRI and a CT scan and said there was something "on" my liver. They did a double puncture biopsy and said there was nothing there not even fibrosis. They then promptly wrote on my chart Not suitable for liver transplant!
I went home but got no better. Again I was told there was something "on" my liver. This time they used an ultra-sound" to direct the biopsy to the exact spot. The result suddenly I had Hepto cellular carcinoma (liver Cancer) and it was also in my lungs and lymph nodes.
That was in early fall.
In December I was put on Nexaver a treatment that supposedly would shrink the tumor to where it could be managed. No attention at all was paid to the tumors in my lungs and strangely I was not sent to oncology the cancer people.
In the new Year I asked to be referred to oncology but nothing was done. I also found some information on a recent treatment that Nova Scotia didn't offer (surprise surprise) and asked to be referred to Montreal for it but again nothing was done.
The Nexaver seemed to be doing nothing but giving me bad chronic constant diarrhea. I expressed my concern that the diarrhea was not allowing the medication to stay in my system long enough to build up and fight the cancer and also my concern about my lungs and asked again about going to oncology to see what they could do. Again nothing was done and there didn't seem to be any great concern about the tumors in my lungs.
It seemed that they were doing nothing but watch to see what the nexaver would do.
A CT scan came back and I was told that the tumoers were in a few cases smaller but weels later somebody evidently better able to read CT scans said no they were larger and the CT scan I had This Friday gone shows they larger still.
Up to this point I am not impressed at all with the treatmant and I suspect that All I'll get from Montreal this late is that it's too late.
Beuce Devenne
Subscribe to:
Posts (Atom)